This last week has been eventful, I’ve sat on my hand TWICE!! How?? What an idiot but thankfully no lasting damage and I had my splint on.

Splint wearing has become extremely sweaty and uncomfortable. So today’s appointment I’m hoping the x-ray will show its healed and I can progress to perhaps either a brace or nothing!!

I’m hoping they will have some more exercises for me too. Or is daily living enough movement for the hand. And I must ask if I can restart my Etoricoxib too, as I’ve been off it for 17 weeks, and this could be why my back and hips are extremely sore too.

Thankfully I think the Right Hand steroid is still working, though I had a definite blip in pain returning. But it’s settled down again somehow, even though I’ve used my walking stick more. So I’m extremely grateful it’s feeling ok.

From 6 weeks to 17 weeks the bone has started to fluff up and heal

Good news the bone is healing nicely, so the splint is no longer needed. Exercise wise I’m doing all I need to do. We had a discussion over the Right hand though, we had planned the exact same surgery for this side. However the bone stock isn’t there, and it’s far more complex as it involves more joints. They are thinking of a silicon implant and pin. And not do the middle finger at the same time as previously planned, as the thumb is complex enough without adding more.

Next appointment is Sept and by then the consultant will have had another meeting of colleagues to discuss the final plans for the right hand. Curse of Ehlers Danlos Syndrome isn’t it.

Arthritis, CMC joint problems, Ehlers Danlos Syndrome, Life Update, Uncategorized

Omg!! Today’s the day I get the cast removed!! Finally. Excited, anxious, apprehensive. All the feelings all at once.

The last week it’s got harder to keep dry and clean, due to doing more physio and yoga, warmer weather and just general living, making you sweat more. So it couldn’t come soon enough this day.

Learnt new skills with my index and middle finger too, completely bypassing the thumb, so that’s good to know while thumb needs to gain strength.

Cast removal was an experience!! Didn’t hurt exactly but the vibrations from it vibrated the metal a bit. Holy christ it is dry skin!! I’m a reptile.

New x-rays taken, bone not quite healed so nearly ended up with a cast back on!! Narrowly escaped with a heated moulded half splint which I need to wear 90% of the time for a week. Back next week for a new visit with consultant.

Metal is aiming to stay in unless there is a serious reason to remove. So I’m pleased with that. Means I can just recover and do physio knowing it doesn’t need to be reopened.

Arthritis, CMC joint problems, Ehlers Danlos Syndrome, Life Update, Uncategorized